This is a bit of a different post from the type that are usually right. This is a one off, right it all in one go, let it all out and get it over with kind of post.
Basically, I’m tired. I’m tired of fighting all the time. To be treated with respect, to be viewed as an equal, to have even the basic things like having somewhere to live and being able to ride in a taxi. I’m exhausted by feeling like every decision I make is bigger than it needs to be because of all the possible repercussions and consequences.
I’m tired of having to worry about whether I tell potential landlords that I have a guide dog or not before or after I view a property. Because if I tell them before, then it gives them the opportunity to pawn me off with some excuse. If I don’t, it gives them the opportunity to discriminate against me to my face.
I’m tired of being paranoid everytime I book a taxi that I might be faced withconfrontation again, because if I don’t tell them about my guide dog the driver might refuse me. But even if I do tell them, that still might happen. When all I want to do is get from A to B.
I’m bored of asking people to talk to me, about me, instead of to my friend/family/whoever happens to be with me. Because apparently the fact that I can’t see very well also means that I can’t speak for myself. Or maybe it just means that blindness comes with deafness as well and the problem is that I can’t actually hear what they’re saying?
I’m exasperated by well-meaning members of the public who take it upon themselves to decide what help I need and that they will provide this help, without even asking me first. So that when someone grabs my arm and starts taking me across the road, where I didn’t even want to go in the first place, I then look like the ungrateful bad guy when I try to explain that I was perfectly fine without them.
I’m sick of feeling like every day is a battle; of having to plaster on that polite smile when someone tries to feed/ped/distract my working dog; of walking that fine line between assertive and aggressive when all I’m trying to do is make my voice heard.
Somebody recently asked me if I think I have excepted my disability. I can 100% say that I am perfectly happy and content with who I am, disability and all. What I struggle with is the way that I am treated because of my disability by other people on a daily basis. This isn’t to undermine those wonderful gems who’s help and understanding I truly value. I just hope that, whoever you are reading this, you understand that I’m human and I get tired too.
I totally understand what you’re saying Elin. The way we are treated as visually impaired people can be awful sometimes. I just want you to know that I understand. I hope you’re ok, i’m always here if you want to talk xx
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Ellen, an excellent article and well put. We can all feel your pain, frustration and tiredness. Let me assure you we all feel tired but we must keep up the fight, otherwise we will continue to be walked over and nothing will get better. It is a fight and a daily struggle for us and tiredness is inevitable. So rest, recharge the batteries then get back on the horse and rejoin the battle. Together we can make a difference. Please don’t give up.
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Firstly, congratulations on your article. I’m sure it will be educational to many sighted people, and that is exactly the point, education.
There are so many myths surrounding blindness, so many ridiculous assumptions about guide dogs. One example of this was when my sons girlfriend asked for directions and the person bent down to tell the guide dog….
Our family continues to learn about the difficulties visually impaired people face, and how to make life more comfortable for them by understanding their needs.
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