Belgium EVS November 2017

It’s definitely on its way to feeling like Christmas here. As well as the weather turning bitter, (I actually think it might rain more in Belgium than it does in Wales), the city is gearing up to the holidays in a big way. Jazzy and I have come to accept that the landscape of the city centre changes pretty much daily in the run up to Christmas, with new obstacles in the form of stalls and chalets appearing every day. The market will eventually span three market squares, more than living up to its reputation as the biggest Christmas market in Europe.

Apart from the Christmas market, Liege also holds a weekly market every Sunday on the river. You can find everything from fresh produce, to hand made clothes, to pets at La Bat. There’s a great atmosphere, even if it’s drizzling, and there’s a long-held tradition of grabbing a beer after doing your shopping, so what’s not to love?

What I also found out recently is the differences between Christmas traditions here compared with back home. Even though Santa still brings gifts for children on Christmas eve, much more importance is placed on Saint Nicholas. He also brings presents to children who have been good throughout the year on the night of the 5th of December and Saint Nicholas’s feast is celebrated on the 6th. In the run, up to Saint Nicholas’s eve, children leave their shoes by the door where they might find small gifts or sweets left inside during the night, and on the night of the 5th they generally leave some food out for Saint Nicholas and a carrot for his horse, However, any children who haven’t behaved during the last year could expect a visit from Saint Nicholas’s alter-ego, who only leaves Cole for naughty children and is sometimes called Whip father.

While the city is busy preparing for the festive season I’ve been settling into something of a routine at work. I mentioned in my previous blog that my main project for EVS is working for an international association for visually impaired people managing their communication. I’ve been able to sink my teeth into this in the last few weeks, writing content for their newsletter and social media about our recent events. I’ve also been pushed out of my comfort zone a little when I’ve been asked to take very active roles in events. For example, I was put in charge of ice-breakers for an intercultural, intergenerational training course we ran last week. It was much harder than I initially expected, finding activities suitable for the groups diverse needs, but I gave it a go and it wasn’t entirely awful.

I’ve also somewhat started my second project, which is working at a youth centre for refugees once a week. This has proved a little tricky initially because so many of the kids and young people are genuinely terrified of Jazzy. The multicultural nature of the youth clubs means that not everyone is aware of guide dogs and have very different views about dogs in general. Because of this, my first few weeks volunteering at the youth clubs have been mainly focused on getting them used to me and Jazzy and letting them get more comfortable with being around us. It’s challenging, but really rewarding when someone manages to overcome their fear.

I feel like my progress in French has stalled a little recently; I’ve missed some of my regular lessons because of work commitments and if I’m honest my enthusiasm has lessened as the lessons have gotten harder. Never the less it’s an essential part of living here so I soldier on and try not to cringe too much at my appalling conjugation.

I grew increasingly worried about Jazzy at the beginning of the month when she seemed to be more and more distracted and generally ineffective when working. I reached out to the local guide dogs school, who were amazing in meeting me and giving me lots of helpful pointers about Jaz. It’s easy for me to forget how sensitive she is sometimes because she’s generally so relaxed, especially when it comes to her sensitivity to my behaviour. The experience only reminded me again how important it is for me to be aware of my own feelings and behaviours, if for nothing else so that I can be mindful of how my state an affect Jazzy. I’m really glad to say that with a bit of reassurance and a lot of encouragement, she is back to her usual cheeky self-swaggering around town like top dog.

Unfortunately, my Italian housemate decided to leave the programme at the beginning of November; she was struggling to adjust to living away from home and wasn’t happy in the situation. It was a shame but not a surprise if I’m honest. Since then, myself and my remaining French flatmate have continued living together in companionable harmony. We aren’t close, but we live together very comfortably which I’m really grateful for.

Overall the last month has been a little more challenging as the honey-moon phase of excitement wares off. My boyfriend visited for a long weekend which was wonderful, but did make me feel a bit moor homesick afterwards. I’m also still really keen to improve my social network as much as I can. It’s a little tricky because of the language barrier, but I’m hopeful that as my French improves so will my social life.

I have also invested some time into finding some way to be active regularly. I visited a local horse-riding school which seemed promising at first, but unfortunately it seemed that the sight of me standing there with my white cane made the ‘blind’ word all too real and they didn’t want the responsibility of me riding at their school. It’s not like this kind of thing is exclusive to Belgium, but didn’t make it any more fun to experience. Thankfully I have a lead on another school that seem much more promising and that I’ll hopefully visit in the next couple of weeks, so keeping fingers crossed for now.

Later this week I’ll be returning to the UK for the first time since I moved to Belgium. I’m going home to attend the final development day of the Change100 programme I completed during the summer. I have to admit that I’m looking forward to being back in London again and specially to reuniting with my fellow Change100 interns and colleagues. I’m sure trying to get through Kings Cross at rush hour will soon burst my romanticised bubble though, no doubt of that. Other than heading home for a few days the next last few weeks of the year are set to be pretty busy as we hold two dinners in the dark, awareness raising events that involve diners trying to eat a three-course meal in complete darkness, and I’m also attending the European Day of Persons with Disabilities conference in Brussels. By far the most terrifying prospect of the next few weeks though is the fact that I somehow volunteered to make mince pies for my French class as part of our multicultural end of term Christmas dinner. Here’s hoping I don’t give everyone food poisoning in the process!

Change 100

I’ve been keeping this under my hat for a while now, but some exciting things are soon ahead for Jazzy and I and I’m excited to share them here.

AS you might know, I graduated from University with a 1st in English Literature in 2016. Since then I stayed in the city I studied in, hoping to find work. I would like to work in Communications, doing things like writing press releases, managing social media platforms etc. I’ve had some experience working in the Corporate Communications team of my University while I was studying, but unfortunately haven’t been able to find work in the sector since graduating.

The process of looking and applying for work as someone with a disability is a topic I’ll expand on in another post, but for now I’ll share the fantastic news that I’ve finally gotten an internship for the summer which will hopefully go a long way to helping me into full time employment.

I’ve gained this internship through the Change 100 Programme, a scheme run by Leonard Cheshire Disability aiming to help disabled students and graduates into work by offering internship opportunities and mentorship. It’s a relatively new programme that is gaining success every year, this year partnering with organisations to offer 140 internships to disabled students and graduates around the country. Find out more information about the Change 100 Programme via this link:

https://www.leonardcheshire.org/support-and-information/life-and-work/skills-development/employment-programmes/change100

Undertaking the internship means relocating for Jazzy and I as we’ll be working in London. We’ll be living just outside the capital and commuting in every day, working five days a week for three months. Inevitably it’ll be a big change for both of us and though it sounds a little daunting I’m excited and confident we’ll both take it in our stride.

We’ve already taken steps to ensuring a smooth transition, having mobility and orientation in London and escalator training for Jazzy. It’s important to take my guide dog into account whenever big changes like this are on the horizon. Thankfully Jazzy is an adaptable and confident dog; she is very quick to learn new routes and enjoys doing it so I don’t foresee any problems where she is concerned.

I’ve also had my first experience of applying to Access To Work; a government funded scheme intended to level the playing field for disabled people in work by providing accessibility equipment and support for a disabled person so that they need not depend on their employer for those adaptions. Access to Work has a somewhat mixed reputation and from my experience with them so far, I’m not sure that reputation is unfounded, though my dealings with them are currently ongoing so I’ll update on my experience with them in a later post.

For now, I think that’s as much as I can say at this point. I start my internship in a couple of weeks so I’ll be sure to keep my readers updated with our progress adapting to working in the big city. Until then, wish me luck!

An open thank you letter

To The counsellor I went to speak to in March 2014,
You may never see this letter, you may not even remember me. But make no mistake that I remember you.

In my first year of university, when life was unbearable and I had nothing left to give, I went to you for help. I gathered the last vestiges of my resolve and forced myself out of the bed I hadn’t left for six days to attend the appointment I’d already rearranged with you twice. 
I remember sitting on the chair in your office, my cane in one hand and a box of tissues you’d handed me in the other, feeling empty; feeling dead; feeling black. I remember the nervousness with which you guided me to my chair and your uncomfortable laugh when I explained that you would need to complete your survey with me as I wouldn’t be able to write my answers myself. 
You asked me to wrate my feelings on a scale, zero being not at all and 10 being all the time. I remember being surprised at my own answers when I responded to statements such as, “I feel hopeless or worthless” never scoring less than 7. 
I knew I was in trouble, that’s why I went to you. I knew that staying in bed for over a week was not normal. I knew that missing countless lectures and cancelling numerous appointments for fear of leaving my room was not normal. I knew that ignoring phone calls and messages from concerned loved ones to avoid admitting what I was doing was not normal. I knew that a black cloud had gripped me, and I went to you to give it a name.
When you ask me why I was there, I told you everything. In a monotone voice and divoid of emotion. Continuous obstacles and injustices had warned me down to the point that the only thing left was anger, and as I told you what had happened during the last few months and how it had made me feel I think you saw how much that anger was consuming me.
I told you how the support I had expected had not been delivered. I told you that I felt isolated and unable to identify with my peers. I told you how, despite feeling unable to leave my room for the last 10 days because of the anxiety that gripped me at the thought of interacting with people, I didn’t want to give in. I told you that I wanted to be there. I told you that I wanted a degree. I told you that I wanted to prove myself, to myself and to the world. 
I wanted you to offer me support, to tell me that it was normal for me to feel this way and that the way I had been treated was unacceptable. I wanted you to tell me that my feelings were justified and that it wasn’t my fault. I wanted you to reassure me that you understood, that I hadn’t failed. But you didn’t.
Instead you told me that “maybe University might not be the right place for me”. You suggested that perhaps I should consider dropping out of my degree, as I had confided in you that I was so close to doing. You admitted that maybe I would be better off going home and giving up.
Thank God I ignored you.
You telling me that I shouldn’t be at university only rekindled the determination in me that had been stamped out by repeated disappointment. Your words rang in my ears and reverberated around my head for months, years afterwards. Your pitty and doubts in my ability became the fuel that only drove me to push myself harder; to get myself better; to believe in my self because you didn’t.
You are not alone in thinking that people like me are not worthy or not capable of achieving. The cane in my hand predisposed you to judge me before I had even started speaking, as it does for so many people in society. Those of us living with disabilities continuously face the misconceptions and misunderstandings of those who do not live with our challenges. But this attitude extends wider than just speaking to my friend rather than me when we are out, or ignoring my refusal of the help you have offered. This attitude leads to systematic failures that put barriers in the path of people like me from living normal lives and achieving our goals. 
Every time you take me by the arm and lead me somewhere I don’t want to go without my consent, you undermine my autonomy and disrespect my personal space; every time you fail to provide me with material in an accessible format, you reinforced the feeling that I and my needs are an afterthought; every time you tell me, that because of the adaptions I need, I am being difficult and giving you more work than you already have, you are reiterating the message that I am not welcome. I am not worthy of the time and effort it would require you to include me. I am an inconvenience that should be reprimanded for having the audacity to expect to be given the same opportunities as those who don’t need The adaptions necessary for me.
You epitomised this attitude for me, and as a result you made me stronger. Your ignorance reawakened and the stubbornness that defines so much of my character, not because it is part of my nature, but because it has to be. Your audacity to suggest that I would be better off giving up on my dream, despite me specifically explaining to you that this wasn’t what I wanted, thickened my skin and hard and my resolve to prove you wrong.
For so long your words were my motivation, though a part of me still believed you. So when, in my third and final year, everything again became too much and I threatened to crumble beneath the pressure to disprove your assumptions, your words again reverberated in my head and convinced me of their truth. 
But you didn’t win. I did. This time when I asked for help I received the reassurance and support you denied me. With that support I was able to again pull myself out of the darkness and overcome the final hurdle that would get me to my goal.
I am graduating with a first class honours, because of you. Whether it was your intention or not, your words have gotten me through the last three years and helped me achieve what I always hoped I could do but often thought was impossible. So I want to thank you for meeting me that day and for judging me as so many others do, because in doing so you gave me a reason to make myself and everyone around me proud. You forced me to find the self belief and self-worth I had lost, you shocked me out of my depression and inspired me to be the person I knew I was, but that you were too blind to see. 
Thank you for giving me the strength to prove my capabilities to anyone who doubts me. Thank you for motivating me to do my absolute best to show exactly what I can do. Thank you for reminding me that I alone can determine my worth. Thank you for having such low expectations of me and challenging me to exceed them. Thank you for inspiring me to continue facing my challenges head on and reminding me why I thrive on doing so. Thank you for teaching me that my disability doesn’t define me, and that it is my responsibility to demonstrate this to anyone who thinks otherwise. Thank you for reminding me why I wanted a degree in the first place. Thank you for driving me to work so hard that I not only exceeded your expectations, but also exceeded my own. 
Thank you, in short, for ignoring my own words and deciding my capabilities based on your judgement of my disability. Because in doing so, you’ve reminded me that nobody has the right to decide my limitations but me.