93% of people registered blind or partially sighted can see something, meaning that only a very small percentage of visually impaired people are completely blind. The RNIB’s #HowISee campaign aims to raise awareness of this fact and dispel the misconceptions that surround visual impairments such as using a guide dog or white cane means that you are totally blind, or that not using a mobility aid means that you are fully sighted.
Watch the #HowISee video here
I am one of the 93%. I have been registered blind since I was seven years old, but I have a limited amount of residual vision which I used to its full advantage.
I have a condition called Lebers Congenital Amaurosis (LCA) which means that my retinas don’t function properly causing my Visual impairment. I also have Nystagmas meaning an involuntary movement of the eyes as they try to focus.
My condition has meant that I have never been fully sighted, but when I was a child I did have a considerable amount of residual vision which meant that I could read, see colour and use magnification for a time.
The nature of my condition however means that my site has been gradually deteriorating since birth, culminating in a sudden deterioration in my teens. This left me with light perception in my right eye and a small amount of residual peripheral vision in my left. My site has stabilised since, though there is the possibility that it could deteriorate again.
I try to use my remaining vision as much as I possibly can, which is something I have had to learn to do. It was only when I received mobility training from a rehab worker who is actually also visually impaired herself two years ago that I was able to teach myself to utilise the remaining vision that I have.
With the peripheral vision in my left I, I can distinguish contrast and rarely I can make out a bright colour. This doesn’t sound like much, but you’d be surprised how useful even that is in daily life. It means that I can follow a building line by distinguishing a white building from a darker one; I can see distinctive road markings such as a zebra crossing; I can find the counter in a Starbucks by spotting the bright lights. All these things help immensely in my orientation and are things I use on a daily basis when getting around independently.
This is my experience of visual impairment, my experience of LCA. But that is not to mean that everyone’s experience is the same. Out of all the visually impaired people I know I don’t think I know two people who see the same thing. Not even people with the same condition as me. I know others with LCA who have enough residual vision to read print and yet others who are totally blind.
I am often asked if I am my guide dogs trainer because I apparently “don’t look blind”. I’m not entirely certain if this is because of how are use my residual vision to get around, or just because I am a reasonably confident young woman who doesn’t fit into the traditional stereotype of a plain old blind man with a white cane. Either way this always feels like a bit of a backhanded compliment to me, because besides the fact that I’m not totally blind so why would I look as such, what does blind look like anyway?
I have mentioned previously on this blog that the spectrum of visual impairment is huge, as is is the spectrum of ways that people live with their visual impairment. This is why it’s problematic to put people in boxes such as guide dog user must be totally blind, or symbol cane user must be able to read small print.
The important message that the #HowISee campaign is trying to convey is not to judge a book by its cover, or a blind person by their mobility aid (or lack there of). Everyone is an individual, even blind people 😉
Join in the campaign by explaining how you see the world and sharing your own stories of any awkward moments or misconceptions you’ve experienced using the #HowISee hashtag throughout August.